Autor de scooby doo pa pa
The following day after the delivery, I had the visit of the pediatrician/neonatologist, Dr. The second twin, Lea, weighed 4.15 pounds and measured 47 centimeters. The first twin, Eva, weighed 4.11 pounds and measured 45 centimeters. The C-section delivery was planned for December 20th (at 37.5 weeks) and the operation itself went fine. I had four ultrasounds/sonograms and everything seemed to be fine in regards to the growth and weigh of our baby girls. We considered the pregnancy to be normal since I did not have any kind of problems or complications. On June 9, we were told there were two babies in different sacs and placentas. We got married on Apand on May 2 of the same year we found out that I was pregnant. My husband is Juan Carlos, is 35 years old. We hope to be a support to other families in the future. These parents share information and provide support. We have been able to network with other families that have children with PA and other metabolic disorders. We have had unbelievable support and help from our family and friends. They are truly invested in Kate’s well-being. We have a wonderful relationship with all of Kate’s doctors and medical providers. We are eternally grateful the people that worked to get newborn screening expanded in Texas. The newborn screening in Texas was expanded in early 2007 (about 6 months before Kate was born) to include Propionic Acidemia. If Kate had not been diagnosed early, we believe that she would have become very ill and where we lived in rural Texas was 3 hours from the specialized medical care that she would have needed. We believe that Kate’s life was saved because of Newborn Screening. Kate is a very happy girl with a sweet and loving demeanor.Īs parents we are grateful for so many things. She is currently on target in all areas developmentally. She just started walking and says more than 10 words. Kate eats solid foods in addition to drinking her metabolic formula. We work very closely with her metabolic team. We have be extremely fortunate as she has been stable, healthy and growing since she was released from Cook Children’s Hospital last year. After 9 days in the hospital, we were able to go home as Kate was able to consume her daily calorie needs. After 2 days in ICU, Kate moved to a private room where we began working on bottle feeding and we increased her daily formula intake. Her blood ammonia dropped to a normal range from its high of 450. Kate quickly showed improvement after her diet was changed. Kate received her special metabolic food and nutrition through an NG tube and we began learning more about her disorder. She was moved to ICU and protein was removed from her diet. On Wednesday JKate was admitted to the hospital and her lab work indicated that she was headed for trouble.
During this time, Kate showed some symptoms of PA-such as sleeping more than typical newborns, she was losing weight and wasn’t consuming enough milk. We received the initial report when Kate was about 11 days old, and after additional testing we received confirmation of the PA diagnosis when Kate was 20 days old. Kate was diagnosed with Propionic Acidemia after we received notification that her Newborn Screening result came back abnormal. Kate was born and weighed in at a healthy 7lbs, 3oz.